When Mira Koh Xin Rong was born, her family’s journey quickly became one of resilience and hope. Diagnosed with Tetralogy of Fallot, a form of congenital heart disease, Mira underwent a life-saving heart repair surgery on 15 July. Complications during and after the operation meant that what was expected to be a critical procedure turned into a prolonged and uncertain battle – one that kept Mira in the Intensive Care Unit for five months.
During this time, Mira’s parents remained by her side every day. From 15 July to 15 December, they found refuge at Ronald McDonald House, just steps away from the hospital. In the most critical moments of Mira’s condition, proximity mattered. The ability to rest nearby meant they could be present at a moment’s notice – especially during times when doctors prepared them for the worst.
“The room offered us rest during the most critical phase of Mira’s ICU stay,” her family shared. “It gave us the comfort of knowing we were always close enough to attend to her if her condition took a turn.”
Beyond physical proximity, it was the sense of quiet support that made a difference. The RMHC team respected the family’s need for space during deeply emotional moments, offering care in ways both seen and unseen. “The staff were quietly praying for Mira to recover,” they recalled – a gesture that brought comfort during an incredibly difficult time.
The experience also connected them with other families walking similar journeys. In shared spaces, bonds were formed with parents of children in critical condition, creating a community of mutual encouragement and understanding. In one particularly poignant moment, Mira’s parent was able to offer a prayer for another child during a Code Blue event – an experience that underscored the strength and solidarity within the RMHC community.
Looking back, what mattered most was having a “home away from home” within the hospital – one that allowed them to remain close to Mira while also finding moments of rest amid the uncertainty.
“To RMHC donors and team,” the family shared, “please know that the Room is not just a facility, but a source of refuge for parents going through one of the hardest times in their lives. Thank you for being a blessing to all of us.”
Mira’s journey is a powerful reminder of why family-centred care matters—and how, even in the most challenging moments, compassion and community can make all the difference.
“The Room is not just a facility, but a source of refuge for parents going through one of the hardest times in their lives.”
